For several years
cochlear implants have offered some deaf people the chance to have a
"sensation of sound". So why would some deaf teenagers choose not to
have the implant even if they had the option?
The issue of cochlear implants and efforts to "cure" deafness
is a very sensitive subject among the 19,600 deaf teenagers in the UK.
Indeed, many young deaf people are proud of deaf culture.
"I never hear anything, I'm fully deaf. With hearing aids all
I could hear was beeps and I thought what's that? So I took them off. I
never use them. What's the point?" says 19-year-old Sara Kendall.
Sara and her boyfriend Asher Woodman-Worrell live with Sara's
mother and brother in Nottingham. Everyone in the family is profoundly
deaf. As Sara and Asher cannot hear or speak, they live in a totally
silent world.
"I'm very strongly in the deaf world," says Sara. "I'm
passionate about it. I can't imagine myself outside of that world. No
thanks. I'm happy where I am, because my parents brought me up deaf."
Even though it might improve her hearing, no one in Sara's family has
ever considered being fitted with a cochlear implant - a surgically
implanted electronic device that can improve hearing by stimulating the
auditory nerve. Although an implant cannot restore hearing to normal it
does give the sensation of sounds.
In the operation, a surgeon creates a small space on the
surface of the skull where the electronics are placed. From here an
electrode carries signals down into the inner ear.
Cochlear implants are not suitable for all deaf people and
those considering the surgery have to undertake in-depth hearing, speech
and language, educational and psychological assessments. Around 500
adults, aged between 15 and 59, receive cochlear implants in the UK each
year.
But some deaf families do not agree with the procedure and
are defiant about remaining in the deaf world. Sara and her family
consider themselves to be very much part of the deaf community and proud
of their deaf culture.
"I don't like to see children suffer because
it's not right. I think cochlear implants look awful attached to the
side of your head… I'd rather they look normal," says Julie Kendall,
Sara's mother.
For Sara, however, it is not just a case of what the implant looks like, but how it would impact on her sense of identity.
"Personally [I] thank God I don't have a cochlear implant
because I wouldn't know where I belong, in the deaf world or the hearing
world," says Sara. "I know I'm in the deaf world, that's it, but with a
cochlear I'd feel in between."
"It's offensive to think you can fix it," she suggests. "You can't fix it. If you're born deaf, you're deaf, that's it."
Asher also finds any suggestion that a cochlear implant might help intrusive.
"We find it offensive when people come in and say, 'oh we can
change you into a hearing person', that's why cochlear implants are a
really sensitive issue for us."
The term "big D-deaf" is sometimes used to refer to those who
identify themselves as culturally deaf, and have a very strong deaf
identity. Tyron Woolfe, deputy director of children and young people at
the National Deaf Children's Society (NDCS) says deaf culture is
extremely varied.
"Deaf teenagers are just like other young
people, with diverse interests and social lives. Each deaf young
person's experience of deaf culture is different," says Woolfe, "but we
do know that being able to meet other deaf young people is very
important to many of the deaf teenagers and children we work with."
The decision to not explore the option of a cochlear implant is a matter of personal choice says Woolfe.
"Every deaf child is different and it is important that there
is a range of provision to meet the diverse needs and preferences of
deaf children.
|
Photo: SPL |
"A cochlear implant is just one option - it would not benefit
all deaf children and young people. Suitability can depend on a child's
level and type of deafness.
"Cochlear implants, whether unilateral or bilateral, don't make deaf
children hearing children. They improve access to sound, but they don't
replace hearing."
Nineteen-year-old Meghan Durno would like to hear more and maintain a connection with both the hearing and deaf world.
She has been profoundly deaf all her life and had her first
hearing aid when she was three months old. She grew up in a deaf family
and her mother as well as her sister and grandparents all inherited
their deafness.
Meghan decided to have a cochlear implant fitted, but the
operation was not without risk as the procedure is most successful when
performed on the ear with the best hearing. After surgery, a patient
waits four weeks before the implant can be switched on as the area needs
to be given time to heal.
During this time Meghan started studying for a veterinary
nursing degree at Edinburgh Napier University and had to rely purely on
lip reading, which made it difficult for her to understand exactly what
her lecturers were saying.
"When I went into the lecture theatre, I just switched off
because the lady that was standing there started pacing up and down and
talking and I couldn't understand what was being said, so I just looked
at the notes," says Meghan.
"I do feel sad sometimes, not so much that I can't hear right
now, but knowing that I'll never be able to hear what hearing people
hear, but I don't get down about it, I know no different."
|
After her cochlear implant operation Meghan could identify different noises |
Once the implant was switched on, Meghan's brain took time to
recognise new sounds, but she very quickly discovered noises that she
has never heard before, like the piercing sound of a baby crying and the
sound of birds singing.
"With the implant, I'm able to hear little things I never
knew existed," says Meghan. "Like when you rub your hands together, I
never knew that made a sound."
"I was lying down one time and I heard a noise and I was like
what's that and I realised it was my own breathing… I've amazed myself
with what I can hear, and amazed a piece of machinery can help you
hear."
Life as a deaf teenager
- Research conducted in 2009 found many deaf children and young
people view their deafness positively and see it as central to their
identity
- Many deaf teens attend SenCity, a multi-sensory club night
which has a vibrating dance floor and taste sensations, while aroma
jockeys mix scents to match the music
- Ninety percent of deaf young people are born to hearing parents
By
Lucy Wallis for BBC News